Showing posts with label coming home. Show all posts
Showing posts with label coming home. Show all posts

Thursday, September 3, 2009

Six months old.

Today was Essie's six-month birthday, or half-birthday as I like to call it. We didn't do anything to celebrate, of course, since she could care less and we had other things to do. Well, I did, anyhow, having an appointment to keep this afternoon. Andrew goes back to work at the end of the month so it's nice to take advantage of being able to go out by myself!

Anyhow: Essie is six months old and we're completely amazed. Yesterday was also her four-month homecoming anniversary, so we had two notable days in a row to feel great about. It's incredibly strange to remember what it was like to hold her as a brand-new preemie. It's even a bit weird to think what it was like to bring her home! I have pictures to look at of that time, but I have to admit that I find it very difficult to go back and look at the Facebook albums I made when she was in the hospital. This is odd to me, since at the time those pictures were precious and I couldn't stop myself from poring over them whenever I was at home where she wasn't. I loved to gaze at them, inspect her every tiny feature, obsess about how much weight she'd put on and whether it was noticeable yet.



Now, though, I get extremely emotional and upset when I look at them. Back then I was trying to be so strong and for the most part succeeding. I didn't have a lot of choice, really, and so I just did it. It was hard and it felt hard, but Essie herself was more important to me. Now that she's home, she's healthy, she's happy and chubby and thriving ... well, maybe now I'm feeling the backlash of how truly difficult the whole experience was. I've got some distance from it and gained some perspective that tells me just how traumatizing it is to nearly lose your baby, nearly die yourself and then have to deal with your baby being very sick and requiring intervention just to survive each day for two months. It ... kind of sucks.



It makes me overwhelmingly grateful for the baby she is now. She's so alive and every day Andrew and I look at her and marvel at her. She reminds us to stop what we're doing and just enjoy life since that's what she does all day long. Her smile makes us smile back every single time. It's impossible not to smile back at her, so smiles have increased exponentially around here. Watching her discover something new or figure out a new trick is like watching a magic show. Every day she's a little brighter, a little stronger, a little bit more aware and alert.



I didn't expect a baby that looks like me, but the older she gets the more people say she does. I don't mind, certainly, and I see so much of my family in her. Her hair is still indeterminate except for the two stubbornly white-blonde spots on the right side near the front. Her eyebrows seem reddish-blonde, but might be darkening up a bit. Her eyes are definitely not blue, but haven't settled on a positive true brown like mine and might end up being hazel; that particular brown-green that a few of my family members share. Her legs don't look especially long to me, but it's hard to find sleepers with long enough legs for her in her age range and so she might end up tall, something that would surprise me but not shock me totally since there are some taller women in my extended family, and there certainly are on Andrew's side of the family.



It's just exciting to watch her grow. She's only three months adjusted and keeping up well with the milestones for that age, but the changes just pop up every few days and I haven't gotten used to one when suddenly she's on to the next thing, soaking up experience as quick as she can. She saw her feet a while ago and watched them suspiciously, not sure how to get them within tasting reach, but grabbed them for the first time the other day at my mom's place while she was playing with an overhead toy, kicking at Big Bird and Cookie Monster. She still doesn't really understand them and hasn't grabbed them since, but to see her grip her pudgy toes with her fingers was amazing to me.

She's a baby, normal and lovely as can be, and I'm so very, very lucky to have her in my life.

Tuesday, June 2, 2009

One month, baby.

Essie's been home with us for a month as of today! It's so strange. On the one hand I can't believe she hasn't always been here with us, but on the other hand it feels like just yesterday we brought her through the apartment doors for the first time.

I don't miss going to the hospital every day. I don't miss the feeling of having her care be something I had no say in. I don't miss feeling like it was a special occasion when I could hold her or do regular, every-day things like change her diaper or bathe her.

I DO miss having medical professionals around all the time to let me know when things are OK. Not that it often happens that I think I need an immediate answer or that she seems sick or anything. It was just a luxury, is all. I also miss free diapers. That was nice.

It's been a strange transition. Very different from bringing home a newborn directly after giving birth, I am certain. She wasn't 'new' in the same way, and was already pretty stoic about a lot of things. We'd had the opportunity to get to know a lot of her quirks already and had some practice when it came to many aspects of her care. I wanted very much to get her used to lots of human contact and love and I've been very successful in that regard, if success means she never wants to be put down now! I joke, but I also like it. I certainly don't get tired of holding her and snuggling her!

I am kind of reluctantly trying to ease her into sleeping on her own, though. Not at night (or whenever I end up getting the bulk of my sleep, anyhow) but during the day when I should be able to put her down and get some things done. She doesn't always want to be in the sling, so I can't depend on it for her sleep times. She definitely knows the difference between being held and simply being set down in warm, cozy blankets and she'll protest.

Anyhow; in the month that she's been home with us she's already gone on two road trips, attended a comic arts festival, ridden the bus and subway and met a bunch of family on both sides. She's outgrown all of her preemie clothes and is quickly starting to work through her newborn stuff as well, fitting better and better into the 0 - 3 months sized stuff instead. She's out of preemie diapers and well into the newborn size, with the Pampers brand newborn size getting a bit tight. She likes having baths (or at least doesn't seem to hate them), loves having her tiny bit of hair brushed and has decided that she's too big for swaddling. Swaddling is for preemie chumps, not grown-up full-term babies like herself.

She'll allow the modified arms-free swaddle but ... come on. That's a toga.

Sunday, May 24, 2009

Guess what today is!

Happy Due Date, Essie!

That's right; today is the day Essie was 'supposed' to be born. Or, the most likely day on which she could have been born. Of course things didn't exactly go to plan, but I was attached to this date for a number of reasons. It was my grandma Morrow's birthday, it's one of Andrew's wonderful cousins birthday, and it just has nice vibes what with all the partying and goodtimes on May 24 weekend.




But yeah ... not so much, huh? Instead of sitting here with a massive belly and feeling as supremely uncomfortable as a pregnant woman can feel (which you know I would be; I am very accomplished at feeling physically uncomfortable) I am sitting here typing on my laptop with a little warm baby sleeping cradled against my left shoulder. I've been a mom for almost three months now. Essie's been home with us for three weeks! What should have been a third trimester became a scary medical journey that I never want to repeat again.




But despite the rough start Essie's so great. So healthy and strong. She's growing and changing incredibly quickly, fattening up and getting more and more aware of us and her surroundings. I've said multiple times to multiple people that her prematurity had nothing to do with her, technically. Pre-eclampsia is about the mother's body malfunctioning, and Essie wasn't the problem physically. She was trying to grow and flourish in there and would have if I hadn't crossed my wires. So I believe very strongly that this is why she managed to grow and flourish like she did in the NICU. She wasn't sick, she didn't need any intervention; she was just early, evicted from her safe haven and forced to deal with a ton of obstacles as a result. In response she basically kicked the ass of all those obstacles and now here she is, a full-term-age baby with fat cheeks (both kinds), a great appetite, a friendly, resilient personality and all the love in the world at her fingertips.




Sometimes when she was in the NICU I felt like the day I got to be a 'real' mom would never come. The constraints of having a NICU baby are many and I've talked a lot about them before. Since she came home I've come to appreciate how that time allowed me to regain my strength and health while helping her develop hers and I'm thankful for it as such. But now that she's here I'm so in love with having her with me, with being her mom and taking care of her that I'd never want to relinquish her to anyone else like that again.




The fact that I'm enjoying this new role as much as I am has been a pleasant surprise. Yes, of course I'm always tired. I was this tired when I worked that night job in Ottawa, though, and this is definitely a more rewarding variant of exhausted. She wakes me up to feed her with escalating growls and when I give her her bottle she is hungry and attacks it like a snapping turtle, her eyes wide. Then she settles into a happy feed, humming and sighing and staring into my eyes. I talk to her and sometimes she 'talks' as well, groaning and growling around her bottle which results in pretty much one of the most hilarious noises ever. She does this with her soother too, and I laugh every single time.




She is lauded for her every poop, fart and burp. Pooping is difficult for her so of course I get genuinely happy that she is more comfortable when she works out her issues, so to speak. Just because her accomplishments are basic and biological in nature doesn't mean she doesn't deserve praise, you know. Hooray for being so good at being a baby! Maybe I feel so enthusiastic about it since for so long she was holed up in an incubator, unable to do all these usual baby things because of the shitty hand she'd been dealt. Her pure baby-ness now is a wonderful thing.




I'm a frickin' mom. Essie has made me into a mom. It's not like I thought it might be which is a relief because frankly I had a dim view of what kind of a mother I'd end up being and what kind of kid I might have. BUT! I had Essie, who is pretty much wonderful and I genuinely like being with her. And so far I'm not sucking so much at the mom thing, most of which I credit entirely to hormones and instinct and the example set me by my own Mom, who taught me common sense.




So Essie; today, the day that I held in my mind for six months as a kind of finish line, a theoretical kind of thing like the idea of what's over that next hill we've never climbed before; today I want to celebrate you and how far you've come in this crazy old world. I'm so proud of how strong you were in the NICU, how you put up with all the discomfort and pain and fright. I'm proud that the nurses all recognized the toughness of you, the fight you put up to make the sliver of the world you were aware of as comfortable and controlled as you could even if it meant just shoving your CPAP or holding tightly on to your feeding tube. I'm proud that you surpassed their expectations of you and did things ahead of schedule as often as possible, even when it caught us unprepared. And I'm proud, proud, proud that you're MY daughter.


Friday, May 8, 2009

Update from the trenches.

OK, so week one with an actual baby living at home with us is coming to an end! Craziness. It's been pretty fine, all around. Like I said before; the first 24 hours were a bit rough, and thankfully I got over the cold pretty quickly or else this whole week would have been horrid, especially since Andrew had to go away for three days on business.

I suspect some thought I might lose my mind being home alone with Shaughnessy so immediately after she arrived, but really it was fine. Before he left town Andrew did a big grocery shop and made sure we had everything we need, plus did some laundry, so we were set that way. All I had to do was continue to feed her, clothe her, clean her and make sure all her needs were met.

And seeing as how I've always been a poor sleeper the new Shaughnessy-driven schedule isn't quite as much of a shock to my system as it might be to someone who swore by a 'normal' sleep schedule before the arrival of their baby. If I depended on sleeping at night, getting up bright-eyed and bushy-tailed in the morning and couldn't function any other way then this would definitely be a nightmare. I've never taken to that sort of thing naturally, though, so this isn't as soul-sucking as it could be. I can adhere to that sort of schedule when I have to, don't get me wrong. I just feel gross about getting up early in the morning every time I have to do it. Every. Single. Time.

Honestly it was really nice to focus entirely on my girl and how she functions. We had real quality time together and it was nice to see how I work as a mom, too. I've found that using the sling that we got makes her a very happy baby. I wasn't really expecting that because I mostly wanted the sling so I could have two hands free when I needed them but still had to carry her around. It's a Hotslings pouch sling and the newborn carry means she's cradled inside it and carried nice and close up against me. The whole effect is very cozy and womb-like and she falls into a really deep, relaxed sleep and I even have to wake her up for a feed when she's like that. Not only that, I can even take a quick nap if I want to while wearing it and she stays comfy and settled without me having to move her anywhere.

So, I guess I'm a sling proponent. I've always loved the idea of them. It makes a lot of sense to keep your baby with you as much as you can when they're this young. I also love the design of this sling in particular. I may find I need to move on to a ring sling or something when she's a bit older, but for now the simplicity of this one is exactly what I want. I'm hoping that the various carries for this one will work as well as the cradle carry so I don't have to look for something else that involves dangly bits and adjusting and wrapping and ties and stuff. Me = Lazy!

So, to sum up: We've had Essie for a week. I did not throw her out the window or down the well or sell her or anything like that. Being alone with her for an extended period is not scary. Slings and baby-wearing are two thumbs up! Yet I want the simplest sling possible because dude, extra complication in my life is a no.

Sunday, May 3, 2009

The baby has landed.

Essie's home now. She's been home since yesterday morning, and we 'roomed in' overnight on Friday night. The rooming in went pretty well all things considered, if you consider that taking care of our daughter was the first priority and sleep was definitely the second! We managed to grab a few hours of sleep each, but not much. Also, a real cold finally decided to hit me that very night. Not one of the 'oh, maybe I'm a cold, maybe I'm not' things that have been plaguing me since she was born. No; a real, no-kidding cold.

Coming home, though, was lovely. We rented a car for the weekend to make things a bit easier for the first couple of days and you should have seen us on the drive from the hospital. Giddy with happiness and love for our little family unit, thrilled to be united at last. Bringing her into the apartment was strange, strange strange and the reality hit pretty dang fast. Like any newborn, Essie's schedule is eat, sleep, diaper change, eat, sleep, diaper change, eat, sleep, diaper change. She goes approximately three hours between feeds, so my entire focus has been on following this schedule and grabbing sleep when she's sleeping (after I've expressed milk, maybe eaten some food, had something to drink, possibly gone to the washroom. I hear tell I might even have a shower someday!)

In a very unexpected development my girl has decided she wants NOTHING to do with my boobs. I'm not talking simply bare boob, here. I mean she seems to suddenly hate the nipple shield with a tiny grunty passion. Whenever I attempt it she gets furious and overwrought and finally I just get a bottle and bottle-feed her because girlfriend needs to eat! She still isn't latching on enough to eat without the nipple shield, so this is a project we'll have to revisit a little later on when things have settled down. She has her first pediatrician's appointment tomorrow and I'll be damned if I go in there with a baby that's lost weight.

In all honesty this last day has been extremely difficult. Even without the cold it would have been, I'm sure, but it's been rough. I've been feverish and coughing and sneezing and throwing up and even with Andrew's considerable help I've found myself wondering how this parenting thing can be manageable long term.

The answer, of course, is that it won't be like this long term and that every new parent goes through this sudden reality-check of actually having a baby to care for around the clock. I will get over this cold, she will gradually go longer between feedings over the months and then start sleeping through the night (hopefully; I'm not dumb enough to think that's any sort of guarantee!) She's going to change so fast and I'll find myself looking back and missing with everything in me the tiny, perfect being that she is in this very moment. I'm disappointed that I got sick for these first, formative days together because I'm already realizing that I hardly remember the many details of what the last 24-plus hours have been like.

What I will remember is how it felt to instinctively hold her near me when I'd crash out with her on the sofa during her sleeps. My own head spinning and sore and stuffed up, but all my senses focused on her breathing and how perfect her round little cheeks are. I'll also remember the painful reality that struck each time her hungry grunts would wake me up too soon from a desperately needed nap. There is no choice. Baby must eat, baby is our baby, we're the ones who have to sustain her. That's life, momma.

So I guess yet another chapter in this weird blog now begins. We'll see how regular my updates are now, but I guarantee I'll have a lot to share when I do!

Wednesday, April 29, 2009

A bit of a surprise!

Our precious, precocious daughter yanked out her feed tube the other day and rather than put it back in her nurse decided to see how well she did on a 'feed on demand' schedule rather than a timed gravity feed schedule. That just means that every time she acted hungry they bottle-fed her with my breastmilk. Apparently she did well and gained weight at her usual rate, so they decided there was no real reason to keep her around much longer and informed us that she should come home within a few days! She'll likely be home on Saturday or Sunday!

Um ... what? A baby here, living with us? We are master procrastinators and having not expected her to come home for at least another couple of weeks we find ourselves now scrambling to prepare. Some things we'd intended to do won't get done before the weekend, but they're not the important things like having diapers and bottles and all the little things you find yourself needing. Moving furniture? Can wait.

Luckily we have the most important basics at hand like a place for her to sleep, a car seat, clothes and other essentials. Plus, my boobs. She actually managed to latch without using the nipple shield for a few minutes today, but I am still glad I have that thing or I don't think we'd be having so much success. But the fact that she can be sustained through bottle feeds means that the hospital feels she's ready to strike out on her own, and so it's time for us to take over.

More to follow, but we have a lot to do!

Wednesday, April 22, 2009

Suckle THIS, smartypants!

Since I'd gone in earlier in the day I called the nursery at around midnight last night to check on Ms. S before going to bed. The call went really well until the end, when things degenerated for me. Here's how it went.

NURSE: She wants to suckle.

ME: Oh, I know. We had a great session with the lactation consultant today. She's really getting it.

NURSE: No, she needs to do it more than that!

ME: Well, I try to do it every day. It doesn't always work out.

NURSE: Every day! More times a day! If you don't she won't nurse later on. She won't know how!

ME: (Getting a bit defensive.) She had an eye exam today. She was too exhausted for more than the once.*

NURSE: Well she really needs to learn this. More times a day!

Now I am all agitated by the thought that due to my negligence my daughter will never really learn to nurse, even though that's bullshit of the highest order and we'd made real progress earlier in the day. I was feeling great about it, really encouraged by the experience and glad that the lactation consultant had helped me out so much and now I am trying to hang on to that and not feel like I'm failing her in some way.

To me the true point is not that she's breastfeeding, even if I've talked a lot about how much I want to be able to do so with her. The truly important thing is that she's getting my breastmilk and the how of it getting inside her is secondary. If she never takes to nursing and we have to bottle-feed her while I continue to pump then that's how it'll be. Ideally I want her to do both so that Andrew can also feed her and so that we can bottle-feed her when it's less convenient to nurse. I am not stuck on her ONLY breastfeeding and nothing else. I think it would be irrational to feel that way, and potentially crazy-making. I don't want to set myself and Shaughnessy up for disappointment and difficulty. I just want to do what works best and makes us both comfortable

I am doing my reading on all this, believe me, and even if it takes time the majority of babies, preemie or otherwise, figure it out and end up doing fine on only nursing, or a combination of both. I wasn't even planning to breastfeed in the first place and had fully expected to formula-feed her with bottles but the fact of her prematurity threw a wrench into those plans. So, this has been a pretty major adjustment of expectations for me and that's probably why I'm pretty flexible about the idea of bottle vs. breast since either is a vehicle for her to drink my breastmilk. She'll be in my arms, alive, not dead due to undiagnosed preeclampsia. I'd rather wake up every day happy about those things than stress out about whether she'll be a perfect breastfeeder!

* The eye exams that the doctors do to check for ROP are very traumatizing and uncomfortable for the babies, so after they have them they're usually very exhausted and out of it for the rest of the day. They tend to sleep more and be more fussy when awake, so things like lick and sniffs aren't usually all that successful.

Sunday, April 19, 2009

I think this song is about me.

OK, one of the weird things about having a premature baby in the hospital is that you are watched and analyzed in a way that parents of full-term, healthy babies are definitely not. When we go in to see our girl our visits get entered in her daily chart and there is a checklist of parental involvement that the nurses have to keep an eye on.

This is for a sensible reason. There are parents who react badly to having a premature baby. They don't know how to relate to this tiny, alarming being. If the baby is especially ill some parents are scared out of their minds and don't know how to deal with it, so end up avoiding the NICU and having to handle their baby. The nurses and doctors need to be aware of this so they can address the situation and help the parents cope.

This hasn't been a problem for us. We go in to see her every day. We gladly change her diapers, hold her, take her temperature, wipe her face and do all the little things we can do for her. Now that she's in level 2 we're encouraged to do even more for her and so far we're loving it.

Because I yam who I yam, though, this is crazy-making for me. I love my baby, I am not afraid to handle her, bathe her, change her, feed her, do all the things for her that as a mother I have to and want to do, but while she's in the hospital this stuff is being monitored and I find it really intimidating. I have this irrational fear that no matter how hard I try, something will be found lacking.

Of course if she'd gone full-term I'd have had her and then been sent home ASAP. There wouldn't be anyone keeping an eye on how many times a day I feed her, how much time I spend with her, what bathing technique I use. I am an overly-private person (in my RL, not so much online, I guess) so this situation pushes all my buttons and I have to work hard to remember that it's not personal.

The nurse who did the bath demo with us the other night said that in a sense the parents of preemies who are first-time parents are lucky to have this extended period of acclimatization. Having the opportunity to learn all the things you've never done before in a setting with professionals who can show you what to do instead of having to figure it out on your own is a luxury. She's totally right. It's my personal oddities that make the 'being monitored' aspect of it difficult for me and I know it. Parents of full-term babies no longer stay in the hospital long enough to experience that kind of nursing care and our nurse said it made her sad.

Do not get me wrong. I am inexpressibly grateful for Shaughnessy's time in the NICU. I have total respect and admiration for WCH and the staff. They have made the scariest time of my life so much easier than it could have been and I will gladly continue to forgo privacy and autonomy in my interactions with my daughter as long as it's in her best interests. If it had to be that way for the rest of her life I'd do it and do it willingly. But the day that she comes home and she's all mine, MINE, MINE! Well; that'll be a really good day. :)

Sunday, March 29, 2009

She's mighty mighty.

Shaughnessy shrieked at me in rage tonight! I was doing Kangaroo Care with her in the NICU and her legs seemed a little scrunched up in a possibly-could-get-uncomfortable way, so I tried to shift them so that she was more stretched out. The nurses like it better when their legs are extended because it gives their lungs more room to breathe, too.

So, I attempted to get her to straighten out her legs a bit and she squawked, then literally shrieked at me. Not a pain yell, but an anger yell. Her nurse, who was tending to another baby, hardly even glanced over, just laughed and said, "Heh, you're trying to move her, aren't you?" I finished what I was doing and tucked her back in against me, at which point she immediately settled down and got totally quiet and happy once again. It seems that when she's comfy she does NOT appreciate being relocated, and gives her nurses the same attitude. Trying to move her to her stomach from a different position always results in stiff, stick-straight legs stuck out in front of her and much bitching.

Apparently she is also trying to figure out how to escape her incubator. The nurses have been reporting to me that she's been discovered up against the back of her incubator, entirely out of her head hugger, and this morning she was wedged into a corner of it, happy as could be. They had no idea how long she'd been like that, but only discovered her when it was time to give her a feed.

The capper, though, is her CPAP. They tried her off of it permanently earlier this week since she was doing so well with an on/off cycle. She did great for the first 24 hours, but then had an episode where she choked a bit on some spit-up, after which they put her back on the CPAP as a preventative measure after the choking so she wouldn't tire out. As of today the CPAP was making her so angry that she spent three hours this morning fussing over it and fighting with it, so they made the decision to take her off of it permanently again rather than have her blow a gasket. Her nurse told me that as soon as they took it off her head she calmed right down and went to sleep.

I'm thinking that girlfriend doesn't realize she's a preemie, or just doesn't care. Apparently she has places to go and people to see and we're cramping her style in a big way. Since she's really doing so well and is what one nurse referred to tonight as a 'straightforward baby' in terms of care needs she'll be moving to the next level NICU fairly soon. That means moving to a different hospital since she's been so healthy and had so few things wrong with her. I'm VERY sad to think of her no longer being at Women's College Hospital, but I can deal. Whatever brings her home to us sooner is good.

There are still some hurdles for her to get past, like regulating her own temperature, learning to nurse as her sole means of food intake and being entirely independent of any breathing assistance. That last is basically no longer an issue unless she has a setback, so the other two just need a few more weeks of growing and learning. Since she is so obviously determined and strong I'm not too worried about her getting there in good time.

I don't know if you can tell, but I am incredibly proud of our baby girl. :)